One of these days I'll post regularly.
We have moved in to a bigger home. It is so much nicer than being cramped in an apartment. There is absolutely no carpet and in many ways that has been much easier. When it is my day to mop all the rooms that is when I yearn for carpet or when I want to lay on the floor on my tummy.
Bitsy Bee is entering middle school this coming year. I can't believe it. On top of this I received her most recent progress report and it boasted all As and Bs; math and science leading with As. She is at her grams right now enjoying some time off. She is such a good student I was able to get her a free pass for the whole week with just a few pages of homework. I miss her terribly and perhaps that is why I decided to post.
My bubber is exiting kindergarten. His set up is going to be the same. He will be in a general education setting with an aid and 30 minutes of rsp a day. He will also still get OT services. He has come such a long way. I can't believe he'll be in 1st grade! He is still on the risperidal medication. The first 6 weeks of the medication it worked so well. He didn't get bad marks during that time at all. Then I skipped a few days and it was decreased for the second phase of the study and now things are crazy again. I wouldn't say it is as bad or as scary as it was but he does have his moments of violent outbursts that is a cause for concern. Having said that he is a great kid and tries his best. Social skills is going really well. Our neighbors son is coming over for their friendship club, though it seems that much of the time Adam is directing him on how to act. This Summer I was told that he will enter a classroom setting with other kids in the program. That will be great and can't wait to see how much he will learn.
My wittle guy is also doing good. Still in preschool and thriving. His teacher second guessed his diagnosis but I'm confident in my experience with him as well as his struggles he currently has. Her program is wonderful so I"m trying to not let it get to me. I get really senstive when someone questions the validity of what I bring forth. I advocated for him like crazy and to have someone think that I made this stuff all up is difficult. I believe she means well and I know I'm taking it too personally. Anyway he is doing great and she is a wonderful teacher. He does have the same handwriting problems that bubber has so that is definitely something I'm watching. I love him to pieces and it is wonderful to see him actaully enjoying life now!
Well, I'm being called to play Guitar Hero with bubber and hubby so I will go now.
Monday, May 18, 2009
Monday, March 2, 2009
Overdue post
Wow I haven't posted in a while and to the perhaps one person who reads this or to myself who may want to ponder it at a later time sorry for the lack of updates; things have been crazy here.
Since my last post quite a bit has happened.
Ethan has had his diagnosis changed from pddnos to autism. I have discontinued services for the intensive ABA program and plan to keep it that way. I will probably look into a less restrive program that will also agree that especially for higher functioning kids they can learn from their environment they just need a little help. A room with very few people isn't always the best answer for these kids. At the same time I realize that some kids do benefit from this program just not my own.
We have decided to move. On one hand it has been too much amidst all the chaos, however, our hope is that end the end the move will be just what we need. We will have more room, more storage, and a backyard. These are the things that we as a family has been missing. This Saturday, the 7th, is our move day. The kids will be with my Mom while we quickly try and make the move go smoothly and have a warm welcome for the kids. They are not immune to the stress that we have endured.
Adam will be receiving his first round of medication today from the MIND institute. This is for a risperdal study that we are involved in. It is a double blind study so not sure whether he is getting the placebo or not until 6 weeks from now. This has been stressful due to the constant appts we have had to go to in order to prepare for the accuracy of the study and to make sure he is healthy enough to take the medication. On another note Ethan is in the APP study which has also had a lot of appointments and more to come.
Ethan tuirned 3! We went to Chuck E Cheese and had Rob's family and one of our friends over to celebrate. It was small but fun. He deserved especially considering he didn't get one for his 2nd birthday due to a hospitalization. He participated more thanI thought he would that day as well. He didn't blow out the candles and didn't want to see us singing but he still sat there which is a huge improvement!
The next day he started his first day of preschool. I stayed the whole day. The next day I left him to experience it for himself. ;) He has done amazingly well. He is happy everytime I go there. In fact most times he tells me to go away and that he doesn't want to go home!
To top all these stressful changes my car was broken into and purse was stolen on Friday the 28th. I was taking Adam to school, left my van at 11:51 and returned to it at about 11:58 only to find the window smashed in and my purse gone. It happened too fast and I find it hard to believe that nobody saw anything considering many parents were taking their kindergarteners to school and I left the van with no parents behind me and returned with at least 4 cars behind me. Those who I have spoken to claim they saw nothing. The purse had my ID, ccs, bank card, shot records, cell phone, etc. The phone was expensive and I'm so mad about that. Everything else was taken care of. They tried to charge more than a grand at Walmart about 15 minutes after they took my purse. Then close to 2thousand 20 minutes later at Sams Club. I'm mad to say the least. Sad as well. It was my fave purse!
Anyway this is too long and hope to update more often after the move so that I don't have to have such a long post.
Since my last post quite a bit has happened.
Ethan has had his diagnosis changed from pddnos to autism. I have discontinued services for the intensive ABA program and plan to keep it that way. I will probably look into a less restrive program that will also agree that especially for higher functioning kids they can learn from their environment they just need a little help. A room with very few people isn't always the best answer for these kids. At the same time I realize that some kids do benefit from this program just not my own.
We have decided to move. On one hand it has been too much amidst all the chaos, however, our hope is that end the end the move will be just what we need. We will have more room, more storage, and a backyard. These are the things that we as a family has been missing. This Saturday, the 7th, is our move day. The kids will be with my Mom while we quickly try and make the move go smoothly and have a warm welcome for the kids. They are not immune to the stress that we have endured.
Adam will be receiving his first round of medication today from the MIND institute. This is for a risperdal study that we are involved in. It is a double blind study so not sure whether he is getting the placebo or not until 6 weeks from now. This has been stressful due to the constant appts we have had to go to in order to prepare for the accuracy of the study and to make sure he is healthy enough to take the medication. On another note Ethan is in the APP study which has also had a lot of appointments and more to come.
Ethan tuirned 3! We went to Chuck E Cheese and had Rob's family and one of our friends over to celebrate. It was small but fun. He deserved especially considering he didn't get one for his 2nd birthday due to a hospitalization. He participated more thanI thought he would that day as well. He didn't blow out the candles and didn't want to see us singing but he still sat there which is a huge improvement!
The next day he started his first day of preschool. I stayed the whole day. The next day I left him to experience it for himself. ;) He has done amazingly well. He is happy everytime I go there. In fact most times he tells me to go away and that he doesn't want to go home!
To top all these stressful changes my car was broken into and purse was stolen on Friday the 28th. I was taking Adam to school, left my van at 11:51 and returned to it at about 11:58 only to find the window smashed in and my purse gone. It happened too fast and I find it hard to believe that nobody saw anything considering many parents were taking their kindergarteners to school and I left the van with no parents behind me and returned with at least 4 cars behind me. Those who I have spoken to claim they saw nothing. The purse had my ID, ccs, bank card, shot records, cell phone, etc. The phone was expensive and I'm so mad about that. Everything else was taken care of. They tried to charge more than a grand at Walmart about 15 minutes after they took my purse. Then close to 2thousand 20 minutes later at Sams Club. I'm mad to say the least. Sad as well. It was my fave purse!
Anyway this is too long and hope to update more often after the move so that I don't have to have such a long post.
Friday, January 16, 2009
Happy Birthday Adam
Today is Adam's 6th Birthday! Nothing special has happened so far. We had a long day at the MIND for a medication study that they are doing for treatment of autism symptoms. Onto that a different time. He opened a few presents from Grandma and Nana & Granddad. Rob is on Cabo on business (ya horrible huh? :)) so we are waiting until he gets back on Sunday to do cake and ice cream. We got him a Leapster 2 for Christmas and a couple games. I think he'll be happy about that. Well, I need to see about putting Ethan to sleep and setting up the other kids with a movie. Eragon will be watched tonight. :)
Thursday, January 15, 2009
Evolution in process
I'm seeing the evolution of puberty/teenager taking place in my home. Rebekah has taken up shaving her legs. She also started listening to the radio at great lengths. She likes to hang in her room now playig her DS and blasting the radio. Right now she is taking a shower with the radio in the bathroom...its LOUD!! OMG this is only the beginning. At least I only have little bits I know it gets worse......
Saturday, January 10, 2009
Boys at this moment
Thought I'd quickly post why on a weekend at 8am I'm able to post anything.
Well, Adam is in the bath right now with his crocodile that he received for Christmas which he explicitly asked for ("I want a plastic or rubber crocodile that I can take in the bath with me thats this big and can float"). He also has goggles on and is pretending to be Steve Irwin diving in the water viewing the "crocs". I hear jumping splashing and some Australian accent at the moment. :)
Ethan is holding his BuzzLightyear and Woody while watching Toy Story. He knows a lot of the words and just stares at it while talking through the scene. It is almost over and will try and sneak in some play time.
Well, Adam is in the bath right now with his crocodile that he received for Christmas which he explicitly asked for ("I want a plastic or rubber crocodile that I can take in the bath with me thats this big and can float"). He also has goggles on and is pretending to be Steve Irwin diving in the water viewing the "crocs". I hear jumping splashing and some Australian accent at the moment. :)
Ethan is holding his BuzzLightyear and Woody while watching Toy Story. He knows a lot of the words and just stares at it while talking through the scene. It is almost over and will try and sneak in some play time.
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